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Showing posts from July 26, 2020

Lockdown, Day 128

I've just done something really stupid and checked the current thinking about the symptoms I should be expecting. It was sort of reassuring that I've pretty much got them all. But the expected longevity was not so good. If I make it to 60 I will have exceeded their expectations. At the moment I should  apparently, be getting my head ready for dialysis and transplant From this evenings reading I am assuming I will never be a grandmother. At least I got to do the Mum thing once. And the chances of getting a dog are zero as I have to wait for the death of the cats first... I'm still sure Rory draws blood as a youth tonic!! Admittedly I am now feeling even more wobbly. If I'm lucky I have 9 years left, even Dad did better than that...

Lockdown, Day 127

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Not had a good few days, feeling constantly sick and everything hurts. It also doesn't help waking up every morning with aching legs which feel as though I've walked for hours all night. This should not be a surprise, but I guess I have got used in the last few months to being pretty much symptom free. I am also aware that it is likely to just get worse as I go on...I really wish that there had been more research done into this disease, unlike Cancer this is not seen as a sexy disease that needs to be beaten, as it is so invisible anyone that has it can escape any type of interest or notoriety in the annals of social media. Kidneys are something everyone finds it easier to ignore than worry about...They are not just here to filter urine, they impact your blood pressure and help with hormonal and nutritional balance, my kidneys not working to full expectation mean I can't 1) absorb iron from food 2) instruct the long bones in my legs to produce new red blood cells 3) get the