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Showing posts from May 16, 2021

Finished...

 Recently has been tough for me, I really feel that I have had enough. For some reason I feel that I need to get things like my funeral planned and my letter of wishes completed and witnessed as I am so worried people I do not want influencing him will try to get too involved in his life.  Having spoken to my nephrologist (finally) he is happy that I have pushed my function up and my creatinine has dropped - but my blood pressure has also shot up and my iron levels are down. I really hate that nobody can give me any time scales for anything, Andy seems to think that I will be on dialysis sooner rather than later . This scares me as nothing has been done about a fistula and I really do not want to start with a neckline as I know I am likely to try to pull it out. I really need to find someone to talk to about all of this. I think Andy is bored of hearing about how worried/scared I am - but I need to get things out. I am also getting fed up with feeling so worthless and such a w...