Day 67...cont.

Today has not exactly followed the route I was expecting...rather odd conisdering every day for the last 66 has...

A fellow member of the Kidney Disease facebook group I belong to has died. I suppose that is something we should all expect as Kidney failure is actually deadly...but over the weekend she appeared fine and has a 3 year old daughter. Mums are not meant to die (or Dads) and in my selfish, locked in mood, it has made me very aware of what might happen to Mikey. I really need to sort out a full support network that I can rely on for him. I don't want all responsibility dumped on Andy as Mikey can be difficult when he puts his mind to it!

I have been sorting some help for Mikey to help us to imorove his self esteem and confidence. In these he is too like me, both are somewhere subterranean due to the way I have been treated by many people in the past. Beccy seems to have already got the measure of my growing treasure and the suggestions she has already made certainly make sense to me, all I have to do now is re-programme Mikey... Anyone got a large magnet I can use to clear his current memory/hard drive???

Comments

Post a Comment

Popular posts from this blog

How Do I keep Going?

 This week I have totally reached the end of my very frayed tether. I am more exhausted than I have felt for months and I am also feeling isolated, un-needed and unwanted. |Mikey is settled at school, is doing well and making new friends and finding new interests. All I do it listen while he frantically searched for reasons for him feeling f=depressed. When he does come up with something you can guarantee that there is nothing I can do to cure or solve whatever he is worrying about. He also has new people he can talk to so I am certainly no longer needed. I've also had my latest lot of blood tests done. I can't remember my access thing for my results so I can't look at them. My memory is failing even more than usual and I hate this. I'm also in constant pain and I can't do anything that is part of my usual way of living. I really just want all this to end. I have no energy, I can't sleep and even cooking something simple leaves me feeling dead on my feet. All I
Read more

Worried

 We are now the day before Mikey starts at The North School....all they have done today is worry me even more that this is the wrong place for my son. I know all parents are protective - but he took so long to have and I really do not trust them to look after him properly. We have been provided a timetable which states that his first lesson is PE - Yr 7 parents have been told not to send PE Kit in tomorrow.... Also, he is in group 7x3....but the timetable has him in 7x2. If they can't send the right timetable how can I trust them to look after the most valuable thing I have? The chair of Governors has also sent a letter about the school joining the Swale Academies Trust. From what I have heard about this on local news I do not want my child at a school under their control. How can I get him out of there? Since I started writing this |I have e-mailed the Head asking why everything is so disorganised the day before they start and have said it will not help kids with autism as everyth
Read more

Lockdown, Day 90

Image
Definitely thinking backwards today!! 10 years ago Andy had to take me to Hospital for monitoring as I couldn't feel the baby moving and a friend in Scotland (who was also pregnant) told me to get checked! I spent all of the Friday afternoon on a monitor and having blood samples taken. The original plan was for me to go in on Sunday for my induction so I was sent home as they were happy my bump was doing OK and there was nothing to worry about! That was my first experience that I remember of how tired hospital tests make me so I was not in a cooking mood! Dinner ended up being KFC and a tub of Ben & Jerries as I had decided that the bump couldn't put that much weight on in 2 days!  Just as I curled up with my tub the hospital called me and told me to go back the following morning as my blood tests had shown a problem. She did tell me what it was but I honestly can't recall what she said! The plan at that point was to do my induction as soon I arrived, so as I thought I
Read more